Tuesday, 21 January 2014

1 Year On From My Diagnosis

It has been one entire year since I finally after so long of not knowing what was wrong with me, got diagnosed with M.E. It feels like it was only yesterday, but in many ways it feels like it was such a long time ago too. I remember welling up as the specialist told me there was very little that could be done. She told me I had to basically just get on with it, and find ways to cope with the symptoms as best I could. She asked me to set myself some goals for 6 months to a year on. I wanted to be able to make myself a sandwich without help, I wanted to be able to read again, I can do those things now. I also wanted to be walking more again, and easing myself back into society, those however, I'm still working on. Small steps have been made, but I still have a long long way to go, but I'll get there, eventually.

Getting a diagnosis has helped me in so many ways. You never want to be diagnosed with something that can't really be helped, something that holds such negative stigma and prejudice, but in a weird way it has been one of the best things that could have happened to me. Diagnosis is crucial in going forward. Since that diagnosis, a lot of research and communicating with other sufferers, I have actually felt like I was starting to understand what was happening and why.

Diagnosis is bittersweet. You don't want to be ill, but having a name to it, and confirmation that you aren't just a big hypochondriac is worth more than you could ever imagine.



Twitter: @hayleyszucs     Instagram: @hayley_eszti     Bloglovin: here

10 comments:

  1. Found your blog through Jacqueline Jossa, around the same time my younger sister has just been diagnosed with Chronic Fatigue Syndrome. I suffer from chronic migraine, but I can't begin to understand what she/you/others are going through.
    I understand the relief at getting a diagnosis though. I'll be telling her to take a look at your blog, see if it helps her reading other people's stories.

    Here's hoping that for you this time next year, you'll be further forward than you are now, just like you are from this time last year.
    Wishing you well and hoping today is a good day,
    Becky xx

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  2. Small steps are the way forward. I was really impatient at the start and kept booming and busting. It is difficult to hear but like you say having a diagnosis helps you make sense of things. Take care aly@perfectisamyth.blogspot.uk

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    1. I was the same at the beginning, but I think you just adapt and that's when the small but important steps can be started :)

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  3. I shared the same MLK quote on my blog. Here's to moving forward. We will get back into society, H-E!

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    1. I think it such a good and relevant quote for us!

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  4. And you are doing just that Hayley-Eszti! You know what you have to do and are mooving forward. Good for you.

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  5. I do think it's good that you've now got a diagnosis. It's very hard and frustrating when you continue to have test after test over a period of years and they can't find anything wrong. They look at you as if you're crazy but now you have something to work on.

    All you can do, it take it one day at a time. You'll have good days and bad ones but don't give up. Our bodies are complicated things, so when you're tired, you're tired. Also, people may have the same illness, but each person is individual. What works for them might not always work for you. In time you'll discover what helps you and what makes you worse. Take care, and I hope you enjoy the rest of this weekend.

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  6. That's a wonderful quote and if you think about it, that's about all we can do in life. Now that you know, your world has opened up. Through your blog, you have met others with the same illness that you can learn from and share with. And you have met all of the rest of us who have come to care about you very, very much. Every small step is a miracle and we will keep cheering you on.

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  7. Good for you that you've managed to achieve the goals you set for yourself! You are totally right that it is necessary to take small steps. This condition teaches us to be super-patient (as in the virtue, not as in doctor/patient, ha!) if nothing else. I hope that things continue to improve for you x
    Sophie www.spooncast.co.uk

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